Manual When The Doctor Says, Alzheimers: Your Caregivers Guide to Alzheimers & Dementia - Revised Edition

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The Foundation focuses on public education targeted to the health care consumer and family caregiver about mental illness prevention and treatment and mental health promotion. The Foundation develops programs to enhance communication and foster broad collaboration among the geriatric mental health research community and mental health care providers on behalf of the general public.


The American Association for Geriatric Psychiatry The American Association for Geriatric Psychiatry AAGP is a professional organization of 2, geriatric psychiatrists and other mental health professionals dedicated to improving the mental health and well-being of older people. AAGP enhances the knowledge base and standards of practice in geriatric psychiatry through education and research and advocates for meeting the mental health needs of older Americans.

For information on geriatric psychiatrists in your area, visit www.

Books on dementia and care | Dementia Care Notes

This publication is part of a series of brochures designed to educate consumers about the mental health of the elderly. For additional consumer brochures, visit www. Ask the physician to: Use simple everyday language and avoid medical jargon. Present the information in small parts. Use examples and analogies. Provide take-home reading or audio-visual material. List other possible sources of information. The patient, you, and other family members should: Repeat what the doctor says to ensure that you understand the information.

Take notes if that helps you retain the information. Ask questions when you do not understand what was said. Contact the doctor later with follow-up questions.

You and your family should be aware of, and watch for, symptoms such as: Denial can also reappear as false hopes that treatment will cure the patient. Information about the disease can help families understand what is happening, and what to expect. Over-involvement Attempts to compensate for the illness and its impairments.

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Sometimes the primary caregiver will try to meet every need of the patient. Families should be aware of all of the available options for support, including in-home support services. The consequences of over-involvement can be detrimental to the patient. Anger Anger can occur when the family realizes that attempts at compensation have failed, and physical and emotional burdens begin to take their toll.

Long-standing and interpersonal problems and unresolved issues can be troubling at this stage if the root of the anger is not addressed. Support groups can help families work through feelings of anger and gain empathy from other families. If anger becomes severe, family members may need to be encouraged to enter counseling so that hostility does not stand in the way of patient care or sever important family ties.

Unresolved feelings of anger or guilt can lead to depression. Guilt is often experienced when the patient can no longer be cared for at home. These feelings are normal responses to extreme stress. It is what caregivers and family members do with their feelings that really matters. Acceptance Resolution or acceptance of the problems. Acceptance comes from a full understanding of the disease and its effect on the family. Support, education, and other resources can help families move toward acceptance. The following symptoms in caregivers may indicate depression: Helping Caregivers Care for Themselves Caregivers who are prepared, knowledgeable, supported, and in good psychological and physical health ultimately provide the best care.

Learn about the available community resources adult day care, in-home assistance, visiting nurses. Ask your physician, inquire at your local library or hospital, or contact the Eldercare Locator visit www. Ask for help from other family members and friends. Attend to your own health. Plan ahead for future legal and financial issues. Attend to your own advanced planning needs in addition to advance planning for the patient in the event you become unable to care for the patient.

Geriatric psychiatrists can provide: Behavioral management, especially for agitation, psychosis or violent behavior. Management of suicidal behavior or treatment of major depression. Individual or family therapy for patients and caregivers.

Alzheimer’s FAQs

Functional evaluation to make a determination about long-term care placement. Call or visit their website. Local chapters provide programs and services for community members. Administration on Aging that helps people locate aging services in every community throughout the United States. Learn about a variety of resources in your community, including: We can be angry at a person, like a friend whose chronic tardiness makes us late for a movie. We can be angry at a thing, like an unreliable car that breaks down again and again. We can be angry at ourselves for… Read More.

What do you do when your family member with dementia still insists upon driving his or her car? The most prescribed include a group of drugs called cholinesterase inhibitors. These go by the trade names of Aricept, Exelon and Razadyne…. See their page Opens in new window.

Difference Between Alzheimer's and Dementia

This Oct , page book is a compilation of dementia and care information and experiences from multiple sources. The book also has personal stories and poems around dementia from India and outside to give insight about the impact of dementia, and some articles by experts. While the information for caregivers to understand dementia and care is useful and reliable, the organization of the book is not explained or intuitive and readers may find it difficult to get a comprehensive overview of what care involves, or to locate a specific topic.

A new caregiver may not be able to do it. There are also formatting and editing issues. The book could have been better and more usable with clearer structuring and better editing. Paperback is available at Amazon. The book is also available as a Kindle eBook.

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  • This slender, modestly-priced Bengali book explains day-to-day dementia care to caregivers. Coverage is good, but the book does not have any illustrations. This small book, with a modestly priced paperback, briefly covers dementia and its symptoms and types, diagnosis, medication overview, impact of dementia, caregiving, caregiver stress, daily routine, challenges, etc. Available from Varishta at this page Opens in new window.

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    This page modestly priced paperback covers dementia and related care topics in reasonable detail in a way very useful to caregivers to understand the situation as well as cope with it. Topics cover ageing, dementia and how it differs from ageing , types of dementia, stages of dementia, various care topics like communication, helping with ADLs, exercise, activities, coping with various types of difficult behaviours, maintaining dignity while helping, quality of life, caregiver stress, self-care, etc.

    Also, many other topics that can help. This book addresses various topics of geriatric care and also has several helpful sketches to show how to do some important care activities. It also includes explanations of the ageing process and related challenges, including a description of dementia, its symptoms, stages, etc.

    Available through ILC, Pune. Approximately pages long, the book is divided into three parts. Part B, The Way Out , shares the lessons and introspection of the author as his understanding improves and he refines his approach for supporting Kanu. The book openly describes the experiences, doubts, mistakes, tough decisions, successes, failures, etc.

    The writing is simple, clean, and honest, making a book an easy and gripping read. The Mission Continues Brig Retd. This first-person account by Brig Retd Bhattacharjya, 84 years old, who looked after his wife Sukla, then 72 years old. The book has several chapters detailed his experiences. The late-stage care chapters, especially, are extremely valuable in our Indian context where late-stage dementia is handled at home and often requires multiple interactions with health care professionals and hospitals.

    The book also contains several chapters about the earlier years of dementia, both the personal side and the social side. Caregivers looking after persons in earlier stages can skip the late-stage dementia part in their first read and return to these parts later. It has many honestly-narrated, touching anecdotes that show various sides of the father—in some he remembers and talks about the past, in some he shows mild confusion, in some where he deteriorates further.

    The writing style is personal, and includes personal musings, regrets, and insight.